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Showing posts with label fatigue. Show all posts
Showing posts with label fatigue. Show all posts

Monday, December 22, 2014

Miracle on the street of Wells

I love Christmastime.  I love the cold weather, bundling up in sweaters, hot cocoa by the fire, giving gifts, and snuggling up with my family.  I was a little worried that things would be off this year, and although it's not our normal Christmas, it seems as though things will be better than I thought.


T had his second chemotherapy infusion last week.  The first one was not exactly carefree: he ended up in the ER due to dehydration.  He was a zombie for at least four days, and I was terrified.  I know he was dreading the second infusion as soon as the first one was over.  After all, going into something that he knew would make him sick wasn't something to look forward to.  Luckily, the staff at NMH was, as always, on its A game and did some futzing around with the chemo dosage and anti-nausea meds.   Apparently there is a good twenty percent of leeway when it comes to the dosage, and T's doc lowered his a bit to see if it would help.

Help it did.  He has had very little nausea compared to the first time, and he has been able to eat and drink normally.  He also figured out that although it is encouraged for chemo patients to eat before a treatment, it's not such a good idea for him.  Hindsight.  My amazing dad took T in for his treatment, and I spent the whole day trying to stay as busy as possible so I didn't think about what the effects might be.  Imagine my surprise and delight when they arrived home and T wasn't clutching an emesis bag.

The sense of relief for me was immediate: I felt like an enormous weight had been lifted off my heart.  I didn't realize how tense I had been, and then all I wanted to do was sleep for about twenty hours.  T was obviously happy as well, and I think he slept well that night knowing that not every infusion would result in days and days of sickness and misery.

 T is still fatigued, but he'll be able to fully participate in our family's holiday happenings.  Even though there are still three days until Christmas Day, my Christmas wish has come true.  I can't think of anything else that could make me as happy as this did.  Well, unless someone got me a unicorn because that would be pretty cool.

From our home to yours, Merry Christmas, and may all of your Christmas wishes come true.

Credit: pwsa.co.uk

Monday, July 30, 2012

I'm back!

Holy cannoli, has it been a long, long, LOOOOOOOONG few weeks.  We closed on the house in Valpo, stayed at my parents' condo in Lexington while I packed up the rest of the house, and moved to Valpo all within less than four weeks.  So it should be no surprise that I have been offline for a little while.  I'm tired.  Really tired.

Overall, things on the Lexington side went well with The Move.  The movers showed up when they were supposed to at all three locations: the condo, T's office, and our house.  It was a crazy-long day for the movers, but luckily it had cooled down to the low-90's after having been 100 degrees just days before.  The guys all worked really hard all day and into the evening.  I was with them most of the day until it was time to get the kids from T's parents and get them ready for bed.  T stayed at our house to supervise the last few hours of the move, and at 6:59 PM that evening, I got a text from him that said, "They might not be able to get everything into one truck."  At that moment, I wished I had some smelling salts because I felt some true Victorian vapors coming on.  The movers ended up taking everything to their headquarters in Louisville to do some rearranging, and somehow, we only ended up needing one truck.  One enormous, tightly packed truck.

All of our earthly possessions were piled on the front lawn.  Classy.


We drove up to Valpo on Thursday: Trevor took Judy in his car and I took the kids.  I think he made it in 5.5 hours, but it took my crew about 8 hours.  We had more potty breaks, obvi.  The kids were great, though, and the trip was pretty smooth.  Lottie didn't seem to be quite herself, but I figured the excitement of the whole process was too much to handle.  I was wrong.

Friday morning, the driver from Lexington, Mike, showed up with the ginormous truck.  I was hoping to see the rest of the crew from Lexington with him, but I was sorely disappointed.  Instead, we had three guys hired from a random day-labor company who were supposed to help Mike unload the truck and move all our stuff.  I have nothing against day-labor workers, but these three guys didn't know the definition of the word labor.  Poor Mike was the only one who knew what to do and how to do it.  We had AJ, a friend of my niece's there to help us, but he couldn't do as much as he wanted to do because the truck just wasn't getting unloaded.  My brother, who has experience in the moving business, texted all morning to see how things were going.  I texted him at noon with the news that the truck was maybe 25% unloaded.  Plus, one of the three stooges left before noon, mumbling something vague about needing insulin, and never came back.  So we were down to Mike and two doofuses, and backup promised by the company was nowhere in sight.  About 45 minutes later, my brother, my knight in shining armor, showed up to show the guys how things were supposed to be done.  He got right in the truck, clapped his hands, and told the guys to get things moving.  With Matt's help, things finally got unloaded.  I guarantee that without Matt, we would have been unloading that truck for days afterwards.  Not a lot was where it was supposed to be, the house was an insane maze of boxes, and everyone was tired and sweaty and peckish.  But it was done.

My parents spent the day tag-teaming between helping at our house and watching the kids at their house.  By Friday morning, it was obvious that Lottie's ennui was more than just The Move: she was sick.  My mom took Lottie to the doctor and had to hold her arms down while the nurse did a throat swab.  Serious gaggage.  Lottie didn't have strep throat, but she did have an ear infection and tonsillitis on the remnants of the tonsils that were removed three years ago.  She had a temperature of 103.5 and fell asleep in the doctor's waiting room, and if you know Lottie, you know that the last time she napped was at the end of the Bush era.

My poor girl mid-yawn.  



With some meds and a lot of rest, she was back on track pretty fast.  The same couldn't be said for me.
That will have to be the next blog post, though.  There's only so much drama one can handle in a single report.  But I'm back and I'm home.  It feels good.

Friday, June 1, 2012

Packing and dragging

I have been just the teensiest bit busy lately.  Go figure.

The kids are out of school (boo!) but summer school starts a week from Monday (yay!).  Don't get me wrong: I love them and love spending time with them.  However, trying to get the house packed with them around is a Sisyphean task, and the time is drawing closer to The Move.  Things have to get done, and they need to be done soon.  I want to pack as much as I can now so I can have at least a little bit of time before The Move to have fun in Lexington with the kids and see some friends as well.

All of this is made more difficult by my own fatigue.  Since I had the total thyroidectomy a couple of months ago, I have been really tired.  I don't mean the normal end-of-the-day tired; I mean I-can't-make-it-through-the-day-with-a-clear-thought-or-without-a-nap kind of tired.  Having two little kids running around makes the nap situation impossible, and loads of caffeine haven't helped, either.  I wake up after a full night's sleep feeling utterly unrefreshed and unwilling to start the day.  I have never been a morning person, but it's really getting ridiculous.  My follow-up appointment with my endocrinologist was scheduled for the first week of July, but I knew I couldn't make it that long without seeing him.  I was able to get an appointment to see his Physician's Assistant, and when I got off the phone, I wept with relief.



As soon as I got to the office the day of my appointment, the nurse took a blood sample and sent it off to the lab.  I had to wait an hour for my results before I could see the PA, so I was glad I had my Kindle with me.  (And, by the way, what's up with that scheduling?  My appointment was at 1:00: shouldn't I have arrived at noon for the blood test so my appointment could really be at 1:00 instead of 2-ish?  Call me crazy, but that just might have worked!)  As soon as I finally saw the PA, she asked me to describe my symptoms.  That wasn't difficult because there were almost too many to list.   After my litany of complaints, she told me that a normal TSH (thyroid-stimulating hormone) level is 0.4 to 6.0.  The doctor is actually trying to keep my level to the lower side, around 0.4, because too much TSH in my system could trigger regrowth of the cancer.  The PA studied my lab results and let me know that my TSH level was at a 42.  So, yeah, things were pretty out of whack.  I cried then, too, because I was relieved that the fatigue wasn't just in my head.  The PA upped my dose of Synthroid immediately, but the meds take a long time to work.  She said it could be months or even over a year before I feel like myself again.  Hey, thanks, PA.  (There may have been more tears at that point, but I don't want to embarrass myself further.)

Synthroid, cruel mistress of my fate


I totally understand that my body has been through a lot, and as my awesome hairstylist Justin said this morning, apparently the thyroid just isn't something to mess around with.  Logically, I know it's going to take time and adjustment to get me to the level where I need to be.  Emotionally, though, I am totally OVER it.  I don't have time to be exhausted: Mama has a house to pack.  I want to see my friends before we move, get pumped up for my niece's graduation party (and have I mentioned she's going to play volleyball at Purdue next year?  Squeeeeee!), finish packing, play with my kids, and not feel like I'm living in a dense fog every moment of every day.  This isn't who I am.  I do everything at warp speed, and I love crossing things off my daily to-do list.  I do not love feeling sub-par at best.  I had faith before that everything would turn out okay after the surgery, and I have faith now that I'll return to normal again someday.  But, man, I really wish that someday could be today.

Okay, I'm done whinging.  (That's a little Harry Potter reference for y'all.)

By the way, does anyone out there want to buy my house?  Please?  :)